Open Science: The Next Frontier for Neurology

"What are One Mind’s open science principles?

To support Open Science for brain disease and injury, One Mind urges the international research community to adopt the following principles:

Provide informed consents for collection of medical data obtained from patients, which should permit use of their de-identified (anonymous) data for research related to a broad range of conditions — consistent with protecting patient privacy.

Use widely accepted common data elements and conform to the highest possible standards when clinical data is collected. This enables it to be used by the widest possible array of users, whether academic, medical, clinical or commercial.

Make data available to the research community as soon as possible after study completion, with the goal of opening data access within six months whenever possible.

Make data accessible to external researchers during the course of a study (subject to relevant data use agreements).

Give data generators proper attribution & credit from those who use their data.

Do not delay the publication of findings, as it may affect patient care.

Intellectual property should not stand in the way of research, but be used to incentivize material participation...."