When open access to research becomes personal – Expanded world – Medium
peter.suber's bookmarks 2018-12-17
"What did I find when I was looking for high-quality, up to date information? First off, that there isn’t much on either of these particular cancers. What there is, is mostly in fairly obscure journals, but some other papers are in much better known journals; overwhelmingly, however, the research required a subscription to read. Cost to read of just the first few articles came to well over AUD $100. And because I do use unpaywall to see if there were OA copies (there weren’t) there are no other easy or legal options for these parents. For those who’d like to say that subscription articles are usually freely available in 6–12 months, I’ll just point out that for one of these cancers the median survival is around 5 months. Oh, and there are trials for these cancers, duly registered but not reported...."