Sage Bionetworks Executive Urges Adoption of Standards to Create 'Open Science' | GenomeWeb
peter.suber's bookmarks 2019-04-22
"Since All of Us is collecting samples and health data from 1 million people at healthcare facilities all over the country, the only way this information dissemination will work is because NIH and its partners are standardizing the results according to the Observational Medical Outcomes Partnership (OMOP) Common Data Model. All of Us also is normalizing phenotypic information on the Substitutable Medical Apps, Reusable Technology (SMART) on FHIRframework, based on the Fast Healthcare Interoperability Resources (FHIR) standard....
In a keynote address to open the annual Bio-IT World Conference & Expo here yesterday, John Wilbanks, chief commons officer at Sage Bionetworks, was clear about his preference for those standards to promote interoperability.
"Choose OMOP or SMART on FHIR and don't choose anything else," he said. The openness of standards and of data itself is key, according to Wilbanks, a longtime advocate of open data....
Sometimes that is because scientists tend to strip out many of the insights before they report results, but often it is due to the fact that researchers do not have or will not make the time to annotate their data in a way that would make their findings more useful to others.
"Until, in my opinion, we figure out how to get machine learning and [artificial intelligence] to do that annotation for us, it's going to be really hard to have data get as reusable as open-source software is," Wilbanks said. "But we will eventually get there." ..."