The importance of transparency and openness in research data to drive patient benefit—Examples from the United Kingdom

peter.suber's bookmarks 2022-01-21


"Key points •Openness in research is discussed in many guises and brings manybenefits and there is a need to join up, share good practice andtalk a common language to make maximum progress.•Importance of open publication as a key step to increasing trustand reducing waste in research.•There is a need to be careful about the language used and it iscrucial that the right safeguards are in place to protect people’spersonal data. Personal data should not be‘open’, and discussingit in this way risks its availability and associated use.•Need to start with trust and involvement of patients and the pub-lic to ensure maximum benefit canflow from data."


From feeds:

Open Access Tracking Project (OATP) » peter.suber's bookmarks

Tags: oa.benefits oa.privacy oa.patients oa.recommendations oa.lay

Date tagged:

01/21/2022, 09:15

Date published:

01/21/2022, 04:15