NIHR position on the sharing of research data | NIHR
peter.suber's bookmarks 2022-06-20
"This statement sets out the NIHR’s current position on the sharing of data produced during research funded by NIHR under its contract terms and conditions. The position is in line with the UK Policy Framework for Health and Social Care Research.
The NIHR strongly supports the sharing of data in the most appropriate way. We are committed to support open access to research data, to help deliver research that maximises benefits to patients and the wider public, the health and care system and which contributes to economic growth in the UK.
The NIHR recognises that the sharing of research data must: protect the confidentiality and privacy of individuals; respect the terms of consent by individuals who are involved in research; be consistent with relevant legal, ethical and regulatory frameworks; and guard against unreasonable costs.
It should also be noted that the NIHR promotes openness and transparency in research through a number of its policies, guidance and platforms, including those listed below ...."