Open science is critical to rare disease research — Chow Lab
lkfitz's bookmarks 2018-08-17
"All research needs to be open. But especially for making progress on rare diseases, research needs to be open. In most cases, there are so few stakeholders (patients, physicians, families, and scientists) that any barrier to open science will be especially damaging. Here are two broad ways that we need to be more open in rare disease science"