Applying Open Practices — Sage Bionetworks – Mozilla Open Innovation – Medium

ab1630's bookmarks 2018-06-02

Summary:

"In our series about organisations which are ‘Open by Design,’ this time we explore how Sage Bionetworks is working to enable and speed up breakthroughs in biomedical research by redefining how complex biological data is gathered, shared and used. This means challenging the traditional relationships between academic researchers, biomedical firms and ‘subjects’ to foster an ethos of data sharing. With a business model that’s dependent on shared resources and collaborative innovation, Sage Bionetworks is fundamentally ‘Open by Design.’

Founded as a spin-out from Merck in 2009, Sage Bionetworks is a non-profit research organization that seeks to develop predictors of disease and accelerate health research by applying a large and impactful set of open practises. These allow for a global research community to share knowledge, interpret large-scale data, crowdsource hypothesis-tests and foster innovation through community challenges. Sage relies on cloud technology, web services and consulting services to encourage and facilitate data sharing between biotech companies, researchers and research subjects. The organisation has developed three tools to support their work: Synapse, a cloud solution for sharing research data between organisations and researchers; DREAM Challenges, a crowdsourcing platform where partners can post and answer questions in biology and medicine; and Bridge, a set of web services designed to support research studies conducted via smartphone. Bridge is the engine behind Apple’s Research Kit, which made tech headlines in 2015 with the successful initial results of Sage Bionetworks’ MPower — a project to diagnose and treat Parkinson’s disease using a rich dataset gathered from thousands of iOS users. Biomedical research is a field with a history of high investment in data-gathering studies, and a reluctance to share. In a field where being first with analysis results means everything, access to datasets is seen as a competitive advantage: products that launch before those of competitors enjoy first-mover market advantages, and for individual researchers, having study results published first improves the chances for receiving tenure and grants. This combination of business and personal career incentives has created a guarded and apprehensive culture around data that recognises only risks tied to sharing, and not the potential rewards in innovation. Sage Bionetworks is breaking through these systemic disincentives by identifying and communicating multi-sided opportunities, co-evolving collaboration structures that demonstrate value, and tailoring services that reward commitment to working in ways that are open...."

Link:

https://medium.com/mozilla-open-innovation/applying-open-practices-sage-bionetworks-840d6b1a5598

From feeds:

Open Access Tracking Project (OATP) » ab1630's bookmarks

Tags:

oa.new oa.data oa.interoperability oa.reproducibility oa.open_science oa.stem oa.biology oa.sage_bionetworks oa.infrastructure oa.platforms

Date tagged:

06/02/2018, 12:42

Date published:

06/02/2018, 08:43