NHS 'seriously' considering how to increase donations of genomic data | Marketing Magazine
abernard102@gmail.com 2013-09-26
Summary:
"The NHS needs to 'seriously' think about how it can encourage more people to share their genomic data to help improve the nation's healthcare, according to Emma Doyle, NHS England head of open data and transparency.
Tens of thousands of 'altruistic' people are already sharing their genomic data, a map of their genomes, with the NHS despite the public health body doing nothing to actively promote the service.
Doyle, who was speaking at a Social Media Week discussion on ‘Does our quantified society herald the death of individualism?’ hosted by SapientNitro, said more could be done by encouraging the sharing of data by 'helping people understand what data we’ve already got and where the gaps are'.
The NHS needs to consider how it can get more people on board and communicate what will happen with their data, according to Doyle ..."