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1 - 25 of 201

Items: 25 total

Large-scale ICU data sharing for global collaboration: the first 1633 critically ill COVID-19 patients in the Dutch Data Warehouse | SpringerLink

https://link.springer.com/article/10.1007%2Fs00134-021-06361-x

petersuber's tagged items 02/22/2021

oa.new oa.medicine oa.data oa.humanitarian oa.netherlands oa.privacy
Balancing Privacy With Data Sharing for the Public Good - The New York Times

https://www.nytimes.com/2021/02/19/business/privacy-open-data-public.html

petersuber's tagged items 02/20/2021

oa.new oa.data oa.medicine oa.privacy oa.benefits oa.risks oa.psi
Open Science to Address COVID-19: Sharing Data to Make Our Research Investment Go Further | SpringerLink

https://link.springer.com/article/10.1007%2Fs43441-020-00250-z

petersuber's tagged items 01/05/2021

oa.new oa.medicine oa.data oa.fair oa.recommendations oa.privacy oa.clinical_trials oa.pharma
The Health care data sharing rule and its roots at Boston Children's Hospital - Discoveries

https://discoveries.childrenshospital.org/health-care-data-sharing-rule/

petersuber's tagged items 12/29/2020

oa.new oa.data oa.medicine oa.patients oa.privacy
OpenNotes – Patients and clinicians on the same page

https://www.opennotes.org/

petersuber's tagged items 12/26/2020

oa.medicine oa.patients oa.partial oa.privacy oa.advocacy oa.opennotes oa.harvard.u hu.oa
Federal Rules Mandating Open Notes

https://www.opennotes.org/onc-federal-rule/

petersuber's tagged items 12/26/2020

oa.new oa.opennotes oa.usa oa.medicine oa.patients oa.partial oa.privacy
45 million medical scans from hospitals all over the world left exposed online for anyone to view – some servers were laced with malware • The Register

https://www.theregister.com/2020/12/15/dicom_45_million_medical_scans_unsecured/

petersuber's tagged items 12/15/2020

oa.medicine oa.privacy oa.images oa.new oa.security
Design and evaluation of a data anonymization pipeline to promote Open Science on COVID-19 - Docwire News

https://www.docwirenews.com/abstracts/design-and-evaluation-of-a-data-anonymization-pipeline-to-promote-open-science-on-covid-19/

openacrs's tagged items 12/11/2020

oa.new oa.open_science oa.humanitarian oa.data oa.privacy oa.medicine
The ethics of data sharing and biobanking in health research

https://wellcomeopenresearch.org/articles/5-270/v1

petersuber's tagged items 11/29/2020

oa.new oa.data oa.medicine oa.ethics oa.dei oa.consent oa.privacy
Balancing’ privacy and open science in the context of COVID-19: a response to Ifenthaler & Schumacher (2016) | SpringerLink

https://link.springer.com/article/10.1007/s11423-020-09860-8

petersuber's tagged items 11/18/2020

oa.new oa.open_science oa.medicine oa.privacy oa.students
Ten principles for data sharing and commercialization | Journal of the American Medical Informatics Association | Oxford Academic

https://academic.oup.com/jamia/advance-article/doi/10.1093/jamia/ocaa260/5981526

petersuber's tagged items 11/16/2020

oa.new oa.data oa.principles oa.medicine oa.clinical_trials oa.privacy oa.recommendations oa.industry oa.pharma
COVID‐19 and the boundaries of open science and innovation: Lessons of traceability from genomic data sharing and biosecurity: EMBO reports: Vol 0, No 0

https://www.embopress.org/doi/full/10.15252/embr.202051773

petersuber's tagged items 10/26/2020

oa.new oa.medicine oa.open_science oa.privacy oa.visualizations oa.preprints oa.speed oa.versions
A pseudonymisation protocol with implicit and explicit consent routes for health records in federated ledgers - IEEE Journals & Magazine

https://ieeexplore.ieee.org/document/9211712

petersuber's tagged items 10/04/2020

oa.new oa.medicine oa.privacy
Patients grow more open with their health data during pandemic - Axios

https://www.axios.com/health-data-covid-privacy-telehealth-coronavirus-0bf20c64-e20a-4edf-8838-1b8c9a79c893.html

petersuber's tagged items 08/15/2020

oa.new oa.medicine oa.humanitarian oa.privacy oa.patients
Responsible, practical genomic data sharing that accelerates research | Nature Reviews Genetics

https://www.nature.com/articles/s41576-020-0257-5

petersuber's tagged items 07/23/2020

oa.new oa.data oa.medicine oa.speed oa.biology oa.reproducibility oa.policies oa.privacy oa.best_practices oa.ethics oa.incentives
As data-sharing becomes more crucial, agencies say industry can help with privacy issues

https://www.fedscoop.com/data-privacy-government-cots-census-bureau/

petersuber's tagged items 07/10/2020

oa.new oa.data oa.medicine oa.humanitarian oa.privacy oa.industry oa.tools oa.obstacles
Assessing Open Access Audio - Full Text View - ClinicalTrials.gov

https://clinicaltrials.gov/ct2/show/NCT04452331

petersuber's tagged items 07/05/2020

oa.new oa.medicine oa.audio oa.privacy oa.quality
Privacy challenges and research opportunities for genomic data sharing | Nature Genetics

https://www.nature.com/articles/s41588-020-0651-0

petersuber's tagged items 07/01/2020

oa.new oa.medicine oa.privacy oa.data
Epidemiological data from the COVID-19 outbreak, real-time case information | Scientific Data

https://www.nature.com/articles/s41597-020-0448-0

petersuber's tagged items 06/01/2020

oa.new oa.data oa.medicine oa.humanitarian oa.privacy oa.dynamic
OpenSAFELY

https://opensafely.org/

petersuber's tagged items 05/11/2020

oa.new oa.data oa.uk oa.medicine oa.privacy oa.humanitarian oa.floss oa.speed
Consent for publishing patient photographs - ScienceDirect

https://www.sciencedirect.com/science/article/pii/S2214911220300242

petersuber's tagged items 04/12/2020

oa.new oa.medicine oa.images oa.photographs oa.privacy oa.licensing oa.libre oa.consent oa.patients
Perspective on Data‐Sharing Requirements for the Necessary Evolution of Drug Development - Barrett - - The Journal of Clinical Pharmacology - Wiley Online Library

https://accp1.onlinelibrary.wiley.com/doi/full/10.1002/jcph.1607

petersuber's tagged items 04/05/2020

oa.new oa.data oa.policies oa.mandates oa.pharmam oa.medicine oa.privacy oa.recommendations
The power of data in a pandemic - Technology in the NHS

https://healthtech.blog.gov.uk/2020/03/28/the-power-of-data-in-a-pandemic/

petersuber's tagged items 03/29/2020

oa.new oa.data oa.uk oa.repositories oa.humanitarian oa.repositories.data oa.medicine oa.privacy oa.platforms oa.infrastructure
Genomics: data sharing needs an international code of conduct

https://www.nature.com/articles/d41586-020-00082-9

openacrs's tagged items 02/05/2020

oa.new oa.data oa.genomics oa.ethics oa.privacy oa.policies oa.legislation oa.biology oa.medicine
HHS Secretary Azar blasts Epic's 'scare tactics' in opposition to data-sharing rules | FierceHealthcare

https://www.fiercehealthcare.com/tech/hhs-secretary-azar-blasts-epic-s-scare-tactics-to-drum-up-opposition-to-data-sharing-rules

petersuber's tagged items 01/29/2020

oa.new oa.usa oa.usa.hhs oa.data oa.medicine oa.privacy oa.lobbying

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