Open Projects - Open Humans

"While many researchers encounter no privacy-based barriers to releasing data, those working with human participants, such as doctors, psychologists, and geneticists, have a difficult problem to surmount. How do they reconcile their desire to share data, allowing their analyses and conclusions to be verified, with the need to protect participant privacy? It's a dilemma we've talked about before on the blog (see: Open Data and IRBs, Privacy and Open Data). A new project, Open Humans, seeks to resolve the issue by finding patients who are willing - even eager - to share their personal data...."