Project Data Sphere calls for open-access model of data-sharing enhances cancer research - CenterWatch News Online
lterrat's bookmarks 2017-03-26
Summary:
"In a Sounding Board article published in the New England Journal of Medicine (NEJM), Project Data Sphere (PDS) stakeholders call on organizations to share cancer clinical trial data with global researchers in a responsible way that will advance cancer research for patient benefit.
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The Project Data Sphere Cancer Research Platform is an open-access cancer data research platform. A free digital library-data laboratory, this platform was launched April 2014 as an independent initiative of the CEO Roundtable on Cancer’s Life Sciences Consortium. This web-based platform was developed for PDS by SAS.
Using this platform, researchers can download, share, integrate and analyze anonymized patient-level data. Data providers—pharmaceutical companies and academic institutions—contribute cancer patient de-identified data. Currently the platform includes 72 datasets derived from almost 42,000 patient lives. Cancer researchers may easily access the site, provided they register and agree to responsible use attestation. More than 1,500 scientists are using PDS in their research aided by the freely available SAS advanced analytics within the platform."