Sizing the Problem of Improving Discovery and Access to NIH-funded Data: A preliminary study

abernard102@gmail.com 2015-07-30

Summary:

[Abstract] To inform efforts to improve the discoverability of and access to biomedical datasets by providing a preliminary estimate of the number and type of datasets generated annually by National Institutes of Health (NIH)-funded researchers. Of particular interest is characterizing those datasets that are not deposited in a known data repository or registry, e.g., those for which a related journal article does not indicate that underlying data have been deposited in a known repository. Such “invisible” datasets comprise the “long tail” of biomedical data and pose significant practical challenges to ongoing efforts to improve discoverability of and access to biomedical research data. This study identified datasets used to support the NIH-funded research reported in articles published in 2011 and cited in PubMed® and deposited in PubMed Central® (PMC). After searching for all articles that acknowledged NIH support, we first identified articles that contained explicit mention of datasets being deposited in recognized repositories. Thirty members of the NIH staff then analyzed a random sample of the remaining articles to estimate how many and what types of datasets were used per article. Two reviewers independently examined each paper. Each dataset is titled Bigdata_randomsample_xxxx_xx. The xxxx refers to the set of articles the annotator looked at, while the xxidentifies the annotator that did the analysis. Within each dataset, the author has listed the number of datasets they identified within the articles that they looked at. For every dataset that was found, the annotators were asked to insert a new row into the spreadsheet, and then describe the dataset they found (e.g., type of data, subject of study, etc.). Each row in the spreadsheet was always prepended by the PubMed Identifier (PMID) where the dataset was found. Finally, the files 2013-08-07_Bigdatastudy_dataanalysis, Dataanalysis_ack_si_datasets, and Datasets additional random sample mention vs deposit 20150313 refer to the analysis that was performed based on each annotator's analysis of the publications they were assigned, and the data deposits identified from the analysis. 

Link:

http://figshare.com/articles/Sizing_the_Problem_of_Improving_Discovery_and_Access_to_NIH_funded_Data_A_preliminary_study/1285515

From feeds:

Open Access Tracking Project (OATP) » abernard102@gmail.com
Open Access Tracking Project (OATP) » page.amanda

Tags:

oa.nih oa.pmc oa.pubmed

Date tagged:

07/30/2015, 14:51

Date published:

07/30/2015, 03:02