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Items: 25 total

Ethical Data Release in Genome-Wide Association Studies in Developing Countries

http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.1000143

Connotea Imports 11/23/2009

oa.medicine oa.new oa.south oa.privacy
Public Access to Genome-Wide Data: Five Views on Balancing Research with Privacy and Protection

http://www.plosgenetics.org/article/info%3Adoi%2F10.1371%2Fjournal.pgen.1000665

Connotea Imports 10/04/2009

oa.medicine oa.new oa.data oa.privacy
NEWTON, Mass., Feb. 21, 2012: Healthcare Organizations Look to Cloud-based Medical Image Exchange as Efficient, Outcome-Driven Alternative to "Sneakernet," Report Shows | PRNewswire | Bradenton Herald Today

http://www.bradenton.com/2012/02/21/3889494/healthcare-organizations-look.html

abernard102's tagged items 02/22/2012

oa.medicine oa.new oa.data oa.comment oa.societies oa.events oa.surveys oa.costs oa.standards oa.tools oa.interviews oa.recommendations oa.studies oa.privacy oa.cloud oa.images oa.lifeimage oa.himss oa.stem oa.people
Man with defibrillator demands access to his own heart’s information

http://www.sacbee.com/2012/02/03/4236563/man-with-defibrillator-demands.html

abernard102's tagged items 02/05/2012

oa.medicine oa.new oa.data oa.comment oa.hardware oa.privacy
Is open science feasible with human subjects? | The Incidental Economist

http://theincidentaleconomist.com/wordpress/is-open-science-feasible-with-human-subjects/

abernard102's tagged items 02/05/2012

oa.medicine oa.new oa.comment oa.open_science oa.events oa.privacy oa.economics oa.law oa.ssh
Survey Finds Patients Excited, Physicians Hesitant About Open-access Medical Notes -- AAFP News Now -- American Academy of Family Physicians

http://www.aafp.org/online/en/home/publications/news/news-now/practice-professional-issues/20120125opennotessurvey.html

abernard102's tagged items 01/27/2012

oa.medicine oa.new oa.comment oa.surveys oa.privacy
Sharing is caring: we need open access to genetic information

http://theconversation.edu.au/sharing-is-caring-we-need-open-access-to-genetic-information-6695

abernard102's tagged items 05/04/2012

oa.medicine oa.new oa.data oa.comment oa.legislation oa.open_science oa.funds oa.biomedicine oa.privacy oa.databases oa.data.standards
Why research should be hacked

http://www.sciencecodex.com/why_research_should_be_hacked-90840

abernard102's tagged items 05/04/2012

oa.medicine oa.new oa.data oa.licensing oa.comment oa.copyright oa.open_science oa.australia oa.crowd oa.quality oa.patents oa.lay oa.profits oa.floss oa.pharma oa.biomedicine oa.privacy oa.harvard.u oa.unsw oa.libre
Open Science and Access to Medical Research | Guest Blog, Scientific American Blog Network

http://blogs.scientificamerican.com/guest-blog/2012/04/24/open-science-and-access-to-medical-research/

abernard102's tagged items 04/24/2012

oa.medicine oa.biology oa.new oa.data oa.gold oa.business_models oa.publishers oa.comment oa.mandates oa.open_science oa.impact oa.funding oa.prestige oa.patents oa.lay oa.profits oa.pharma oa.recommendations oa.biomedicine oa.privacy oa.policies oa.journals
Sage Bionetworks Moves from Thinking Stage to Doing Stage

http://www.xconomy.com/san-francisco/2012/04/18/sage-bionetworks-moves-from-thinking-stage-to-doing-stage/

abernard102's tagged items 04/19/2012

oa.medicine oa.biology oa.new oa.data oa.comment oa.open_science oa.events oa.crowd oa.students oa.funding oa.sustainability oa.lay oa.pharma oa.biomedicine oa.privacy oa.harvard.u oa.stanford.u oa.columbia.u oa.sage_bionetworks oa.u.california oa.economics_of
PLoS Medicine: Open Clinical Trial Data for All? A View from Regulators

http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.1001202#top

abernard102's tagged items 04/12/2012

oa.medicine oa.new oa.data oa.gold oa.plos oa.europe oa.standards oa.pharma oa.privacy oa.ema oa.encepp oa.journals
EMA calls for open access to clinical trial data after Tamiflu concerns

http://www.pmlive.com/pharma_news/ema_calls_open_access_clinical_trial_data_tamiflu_concerns_398270

abernard102's tagged items 04/12/2012

oa.medicine oa.new oa.data oa.gold oa.comment oa.usa oa.plos oa.europe oa.standards oa.pharma oa.encepp oa.privacy oa.cdc oa.ema oa.fda oa.who oa.journals
Open Science and Data Sharing in Clinical Research Basing Informed Decisions on the Totality of the Evidence

http://circoutcomes.ahajournals.org/content/5/2/141.full

abernard102's tagged items 03/26/2012

oa.medicine oa.new oa.data oa.licensing oa.usa oa.nih oa.societies oa.open_science oa.pd oa.benefits oa.privacy oa.fda oa.encouragement oa.aha oa.libre oa.clinical_trials oa.pharma oa.copyright
The Importance of Clinical Trial Data Sharing Toward More Open Science

http://circoutcomes.ahajournals.org/content/5/2/238.full

abernard102's tagged items 03/26/2012

oa.medicine oa.new oa.data oa.gold oa.policies oa.usa oa.nih oa.societies oa.open_science oa.access oa.peer_review oa.europe oa.preservation oa.costs oa.yale.u oa.standards oa.funding oa.funders oa.wellcome oa.rcuk oa.repositories.data oa.recommendations oa.privacy oa.world_bank oa.fda oa.grey oa.aha oa.biolincc oa.journals oa.repositories oa.clinical_trials oa.pharma
Shadows over data sharing

http://www.springer.com/about+springer/media/springer+select?SGWID=0-11001-6-1410543-0

abernard102's tagged items 03/07/2013

oa.medicine oa.new oa.data oa.business_models oa.comment oa.mandates oa.nih oa.impact oa.prestige oa.funders oa.history_of oa.wellcome oa.biomedicine oa.privacy oa.debates oa.celera oa.policies
Cloud Computing, the EU, and Data Governance: A Sage Bionetworks White Paper | Sage Bionetworks - Redefining. Challenging. Predicting.

http://sagebase.org/2013/03/26/cloud-computing-the-eu-and-data-governance-a-sage-bionetworks-white-paper/

petersuber's tagged items 03/26/2013

oa.medicine oa.new oa.data oa.reuse oa.privacy oa.sage_bionetworks
Genetic Alliance Announces Registries for All

http://lists.okfn.org/pipermail/open-science/2013-April/002353.html

petersuber's tagged items 04/06/2013

oa.medicine oa.new oa.data oa.privacy
Clinical trials directive: The Parliament's political dilemna | EurActiv

http://www.euractiv.com/health/european-parliament-clinical-tri-analysis-518898

abernard102's tagged items 04/09/2013

oa.medicine oa.new oa.data oa.policies oa.licensing oa.comment oa.legislation oa.copyright oa.europe oa.standards oa.biomedicine oa.privacy oa.clinical_trials oa.ema oa.definitions oa.libre oa.pharma
EuroBiotechNews: EMA may not publish trial data

http://www.eurobiotechnews.eu/news/news/2013-02/ema-may-not-publish-trial-data.html

abernard102's tagged items 05/03/2013

oa.medicine oa.new oa.data oa.policies oa.comment oa.europe oa.litigation oa.biomedicine oa.privacy oa.clinical_trials oa.ema oa.abbvie oa.intermune oa.pharma
One step forward for better evidence for healthcare… | Naturally Selected

http://blog.f1000.com/2013/05/07/one-step-forward-for-better-evidence/

abernard102's tagged items 05/09/2013

oa.medicine oa.new oa.data oa.licensing oa.comment oa.copyright oa.consultations oa.europe oa.standards oa.formats oa.f1000 oa.biomedicine oa.privacy oa.clinical_trials oa.ema oa.libre oa.pharma
European Medicines Agency - Document search - Access to documents

http://www.ema.europa.eu/ema/index.jsp?curl=pages/document_library/document_listing/document_listing_000312.jsp&mid=WC0b01ac0580022517

abernard102's tagged items 05/10/2013

oa.medicine oa.new oa.data oa.policies oa.comment oa.europe oa.biomedicine oa.privacy oa.clinical_trials oa.ema oa.medicine.veterinary oa.pharma
Open Data Advocate Joins Patient Privacy Rights Group as Chief Technology Officer | The Doctor Weighs In

http://www.thedoctorweighsin.com/open-data-advocate-joins-patient-privacy-rights-group-as-chief-technology-officer/

petersuber's tagged items 05/27/2013

oa.medicine oa.new oa.data oa.people oa.privacy
Geneticists push for global data-sharing : Nature News & Comment

http://www.nature.com/news/geneticists-push-for-global-data-sharing-1.13133

abernard102's tagged items 06/06/2013

oa.medicine oa.new oa.data oa.comment oa.nih oa.advocacy oa.standards oa.wellcome oa.biomedicine oa.benefits oa.privacy oa.bgi
NIMH · Open Data

http://www.nimh.nih.gov/about/director/2013/open-data.shtml

abernard102's tagged items 06/16/2013

oa.medicine oa.new oa.psi oa.policies oa.comment oa.government oa.usa oa.green oa.neuro oa.psychology oa.biomedicine oa.privacy oa.clinical_trials oa.obama_directive oa.nimh oa.repositories oa.data oa.pharma oa.ssh
How should clinical trial data be shared? | BMJ

http://www.bmj.com/content/347/bmj.f4465?ijkey=gLoXxfN1QGG6JYp&keytype=ref&utm_source=buffer&utm_campaign=Buffer&utm_content=buffer8b4d4&utm_medium=twitter

abernard102's tagged items 07/16/2013

oa.medicine oa.new oa.data oa.licensing oa.comment oa.usa oa.copyright oa.best_practices oa.patents oa.biomedicine oa.privacy oa.bmj oa.libre oa.clinical_trials oa.pharma

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