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Items: 25 total

As Sharing of Clinical-Trial Data Gains Acceptance, Methods Get Scrutiny - Percolator - The Chronicle of Higher Education

http://chronicle.com/blogs/percolator/as-sharing-of-clinical-trial-data-gains-acceptance-methods-get-scrutiny/33247

abernard102's tagged items 08/06/2013

oa.medicine oa.new oa.data oa.comment oa.usa oa.nih oa.biomedicine oa.privacy oa.glaxosmithkline oa.itn oa.clinical_trials oa.pharma oa.americansocietyofcriminology
New clinical trial data sharing principles agreed

http://www.out-law.com/en/articles/2013/august/new-clinical-trial-data-sharing-principles-agreed-/

abernard102's tagged items 08/07/2013

oa.medicine oa.new oa.data oa.policies oa.comment oa.usa oa.europe oa.biomedicine oa.privacy oa.clinical_trials oa.efpia oa.pharma oa.americansocietyofcriminology
Balancing privacy with public benefit : Nature News & Comment

http://www.nature.com/news/balancing-privacy-with-public-benefit-1.13506

abernard102's tagged items 08/09/2013

oa.medicine oa.new oa.data oa.npg oa.policies oa.comment oa.crowd oa.biomedicine oa.privacy oa.clinical_trials oa.surveys oa.pharma oa.americansocietyofcriminology
Harvard researchers, pharma experts offer recommendations to expand access to clinical trial data | Science Codex

http://www.sciencecodex.com/harvard_researchers_pharma_experts_offer_recommendations_to_expand_access_to_clinical_trial_data-121428

abernard102's tagged items 10/23/2013

oa.medicine oa.new oa.data oa.policies oa.comment oa.usa oa.europe oa.reports oa.recommendations oa.biomedicine oa.privacy oa.harvard.u oa.clinical_trials oa.ema oa.fda oa.pharma oa.americansocietyofcriminology
Expanding access to clinical trial data responsibly

http://www.sciencedaily.com/releases/2013/10/131021211716.htm

abernard102's tagged items 10/24/2013

oa.medicine oa.new oa.data oa.policies oa.comment oa.usa oa.europe oa.recommendations oa.biomedicine oa.privacy oa.harvard.u oa.clinical_trials oa.ema oa.fda oa.reports oa.pharma oa.americansocietyofcriminology
Open-access genomics database causes hand-wringing in U.K. - FierceBiotechIT

http://www.fiercebiotechit.com/story/open-access-genomics-database-causes-hand-wringing-uk/2013-11-11

abernard102's tagged items 11/12/2013

oa.medicine oa.new oa.comment oa.government oa.crowd oa.uk oa.funders oa.wellcome oa.lay oa.biomedicine oa.privacy oa.genomics oa.illumina oa.pgp-uk oa.genomics_england oa.americansocietyofcriminology
Do Drugmaker Plans To Release Trial Data Go Far Enough? - Forbes

http://www.forbes.com/sites/edsilverman/2013/12/07/do-drugmaker-plans-to-release-trial-data-go-far-enough/

abernard102's tagged items 12/08/2013

oa.medicine oa.new oa.data oa.policies oa.comment oa.europe oa.biomedicine oa.privacy oa.clinical_trials oa.ema oa.glaxosmithkline oa.pfizer oa.pharma oa.americansocietyofcriminology
Clinical research and open data | NIHR Clinical Research Network partner zone | theguardian.com

http://www.theguardian.com/healthcare-network/nihr-crn-partner-zone/clinical-research-open-data

abernard102's tagged items 01/29/2014

oa.privacy oa.policies oa.government oa.uk oa.nihr oa.medicine oa.data oa.new ru.sparc oa.americansocietyofcriminology
The Michael J. Fox Foundation and Intel Join Forces to Improve Parkinson's Disease Monitoring and Treatment Through Advanced Technologies | 4-Traders

http://www.4-traders.com/INTEL-CORPORATION-4829/news/Intel--The-Michael-J-Fox-Foundation-and-Intel-Join-Forces-to-Improve-Parkinsons-Disease-Monitorin-18902185/

petersuber's tagged items 08/15/2014

oa.new oa.medicine oa.funders oa.data oa.privacy
Genes | Free Full-Text | Open Access Data Sharing in Genomic Research

http://www.mdpi.com/2073-4425/5/3/739

abernard102's tagged items 08/30/2014

oa.new oa.mdpi oa.medicine oa.genomics oa.policies oa.privacy oa.lay oa.americansocietyofcriminology
Ethics and best practices in sharing individual-level research data - Global Health Training Centre

https://globalhealthtrainingcentre.tghn.org/ethics-and-best-practices-sharing-individual-level-data-clinical-and-public-health-research/

abernard102's tagged items 08/23/2015

oa.new oa.best_practices oa.privacy oa.data oa.medicine oa.biomedicine oa.pharma oa.courses oa.americansocietyofcriminology
European Commission : CORDIS : News and Events : EU funded scientists build genome-based ‘reference library’ for blood diseases

http://www.cordis.europa.eu/news/rcn/123767_en.html

page_amanda's tagged items 08/26/2015

oa.new oa.data oa.genomics oa.medicine oa.europe oa.privacy oa.recommendations oa.americansocietyofcriminology
How can we advance data sharing in dementia research? - On Biology

http://blogs.biomedcentral.com/on-biology/2015/10/09/data-sharing-in-dementia-research/

abernard102's tagged items 10/11/2015

oa.new oa.comment oa.events oa.presentations oa.data oa.open_science oa.lay oa.privacy oa.medicine oa.biomedicine oa.pharma oa.public_health oa.americansocietyofcriminology
Access : Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach : European Journal of Human Genetics

http://www.nature.com/ejhg/journal/vaop/ncurrent/full/ejhg2015239a.html

abernard102's tagged items 11/12/2015

oa.new oa.studies oa.europe oa.policies oa.data oa.clinical_trials oa.security oa.privacy oa.medicine oa.biomedicine oa.genomics ru.sparc15 oa.paywalled oa.pharma oa.americansocietyofcriminology
New information in appeal on open health data

http://www.openstate.eu/2015/12/new-information-in-appeal-on-open-health-data/

page_amanda's tagged items 12/17/2015

oa.new oa.netherlands oa.medicine oa.ehr oa.psi oa.foi oa.privacy oa.data oa.americansocietyofcriminology
Book review: Sharing Clinical Trial Data - On Medicine

http://blogs.biomedcentral.com/on-medicine/2015/12/29/book-review-sharing-clinical-trial-data/

abernard102's tagged items 12/31/2015

oa.new oa.book_review oa.data oa.clinical_trials oa.policies oa.privacy oa.medicine oa.biomedicine oa.pharma oa.americansocietyofcriminology
Why is the sharing of individual participant data important for cancer research? - On Medicine

http://blogs.biomedcentral.com/on-medicine/2016/01/06/sharing-individual-participant-data-important-cancer-research/

abernard102's tagged items 01/08/2016

oa.new oa.comment oa.bmc oa.publishers oa.business_models oa.medicine oa.biomedicine oa.pharma oa.data oa.clnical_trials oa.policies oa.privacy oa.americansocietyofcriminology
PACE trial and other clinical data sharing: patient privacy concerns and parasite paranoia – For Better Science

https://forbetterscience.wordpress.com/2016/02/08/pace-trial-and-other-clinical-data-sharing-patient-privacy-concerns-and-parasite-paranoia/

abernard102's tagged items 02/10/2016

oa.new oa.comment oa.data oa.clinical_trials oa.privacy oa.medicine oa.biomedicine oa.pharma oa.americansocietyofcriminology
Yes, You Can Reconcile The Wide Sharing Of Personal Medical Research Data With Greater Participant Control | Techdirt

https://www.techdirt.com/articles/20160304/10122633808/yes-you-can-reconcile-wide-sharing-personal-medical-research-data-with-greater-participant-control.shtml

abernard102's tagged items 03/17/2016

oa.new oa.comment oa.medicine oa.biomedicine oa.data oa.clinical_trials oa.lay oa.privacy oa.apps oa.tools oa.pharma oa.americansocietyofcriminology
Journal working to strike balance between sharing data, respecting privacy - The Boston Globe

https://www.bostonglobe.com/opinion/letters/2016/04/15/journal-working-strike-balance-between-sharing-data-respecting-privacy/tth97FhW7pgl7ThA2V88QJ/story.html

abernard102's tagged items 04/15/2016

oa.new oa.comment oa.data oa.privacy oa.medicine oa.biomedicine oa.pharma oa.americansocietyofcriminology
ICMJE Gets an Earful on Its Data-Sharing Proposal for Clinical Trials - Daily News - TCTMD

https://www.instapaper.com/read/717512656

lkfitz's tagged items 04/28/2016

oa.new oa.comment oa.data oa.open_science oa.publishing oa.gold oa.medicine oa.privacy oa.objections oa.debates oa.negative oa.obstacles oa.pharma oa.journals oa.americansocietyofcriminology
ICMJE Gets an Earful on Its Data-Sharing Proposal for Clinical Trials - Daily News - TCTMD

http://www.tctmd.com/show.aspx?id=134942

lkfitz's tagged items 04/28/2016

oa.new oa.comment oa.data oa.open_science oa.publishing oa.gold oa.medicine oa.privacy oa.objections oa.debates oa.negative oa.obstacles oa.pharma oa.journals oa.americansocietyofcriminology
Biological mechanisms discovery by globally-distributed research force - EuroScientist journal

http://www.euroscientist.com/biological-mechanisms-discovery-globally-distributed-research-force/

lkfitz's tagged items 04/28/2016

oa.new oa.biology oa.publishing oa.biomedicine oa.medicine oa.open_science oa.privacy oa.netherlands oa.orcid oa.rdf oa.business_models oa.americansocietyofcriminology
Citizen Science: The Law And Ethics of Public Access to Medical Data

http://btlj.org/data/articles2015/vol30/30_3/1741-1806%20Hoffman.pdf

lkfitz's tagged items 05/11/2016

oa.new oa.medicine oa.data oa.legislation oa.privacy oa.mining oa.benefits oa.obstacles oa.law oa.americansocietyofcriminology
Why Out-of-Hospital Blockchains Matter - CoinDesk

http://www.coindesk.com/hospital-blockchains-matter/

lkfitz's tagged items 05/15/2016

oa.new oa.medicine oa.tools oa.blockchain oa.industry oa.comment oa.p2p oa.privacy oa.pharma oa.americansocietyofcriminology

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