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Items: 25 total

Epidemiological data from the COVID-19 outbreak, real-time case information | Scientific Data

https://www.nature.com/articles/s41597-020-0448-0

petersuber's tagged items 06/01/2020

oa.new oa.data oa.medicine oa.humanitarian oa.privacy oa.dynamic
Privacy challenges and research opportunities for genomic data sharing | Nature Genetics

https://www.nature.com/articles/s41588-020-0651-0

petersuber's tagged items 07/01/2020

oa.new oa.medicine oa.privacy oa.data
Assessing Open Access Audio - Full Text View - ClinicalTrials.gov

https://clinicaltrials.gov/ct2/show/NCT04452331

petersuber's tagged items 07/05/2020

oa.new oa.medicine oa.audio oa.privacy oa.quality
As data-sharing becomes more crucial, agencies say industry can help with privacy issues

https://www.fedscoop.com/data-privacy-government-cots-census-bureau/

petersuber's tagged items 07/10/2020

oa.new oa.data oa.medicine oa.humanitarian oa.privacy oa.industry oa.tools oa.obstacles
Responsible, practical genomic data sharing that accelerates research | Nature Reviews Genetics

https://www.nature.com/articles/s41576-020-0257-5

petersuber's tagged items 07/23/2020

oa.new oa.data oa.medicine oa.speed oa.biology oa.reproducibility oa.policies oa.privacy oa.best_practices oa.ethics oa.incentives
Patients grow more open with their health data during pandemic - Axios

https://www.axios.com/health-data-covid-privacy-telehealth-coronavirus-0bf20c64-e20a-4edf-8838-1b8c9a79c893.html

petersuber's tagged items 08/15/2020

oa.new oa.medicine oa.humanitarian oa.privacy oa.patients oa.lay
A pseudonymisation protocol with implicit and explicit consent routes for health records in federated ledgers - IEEE Journals & Magazine

https://ieeexplore.ieee.org/document/9211712

petersuber's tagged items 10/04/2020

oa.new oa.medicine oa.privacy
COVID‐19 and the boundaries of open science and innovation: Lessons of traceability from genomic data sharing and biosecurity: EMBO reports: Vol 0, No 0

https://www.embopress.org/doi/full/10.15252/embr.202051773

petersuber's tagged items 10/26/2020

oa.new oa.medicine oa.open_science oa.privacy oa.visualizations oa.preprints oa.speed oa.versions
Ten principles for data sharing and commercialization | Journal of the American Medical Informatics Association | Oxford Academic

https://academic.oup.com/jamia/advance-article/doi/10.1093/jamia/ocaa260/5981526

petersuber's tagged items 11/16/2020

oa.new oa.data oa.principles oa.medicine oa.clinical_trials oa.privacy oa.recommendations oa.industry oa.pharma
Balancing’ privacy and open science in the context of COVID-19: a response to Ifenthaler & Schumacher (2016) | SpringerLink

https://link.springer.com/article/10.1007/s11423-020-09860-8

petersuber's tagged items 11/18/2020

oa.new oa.open_science oa.medicine oa.privacy oa.students
The ethics of data sharing and biobanking in health research

https://wellcomeopenresearch.org/articles/5-270/v1

petersuber's tagged items 11/29/2020

oa.new oa.data oa.medicine oa.ethics oa.dei oa.consent oa.privacy
Design and evaluation of a data anonymization pipeline to promote Open Science on COVID-19 - Docwire News

https://www.docwirenews.com/abstracts/design-and-evaluation-of-a-data-anonymization-pipeline-to-promote-open-science-on-covid-19/

openacrs's tagged items 12/11/2020

oa.new oa.open_science oa.humanitarian oa.data oa.privacy oa.medicine oa.americansocietyofcriminology
45 million medical scans from hospitals all over the world left exposed online for anyone to view – some servers were laced with malware • The Register

https://www.theregister.com/2020/12/15/dicom_45_million_medical_scans_unsecured/

petersuber's tagged items 12/15/2020

oa.medicine oa.privacy oa.images oa.new oa.security
OpenNotes – Patients and clinicians on the same page

https://www.opennotes.org/

petersuber's tagged items 12/26/2020

oa.medicine oa.patients oa.partial oa.privacy oa.advocacy oa.opennotes oa.harvard.u hu.oa oa.lay
Federal Rules Mandating Open Notes

https://www.opennotes.org/onc-federal-rule/

petersuber's tagged items 12/26/2020

oa.new oa.opennotes oa.usa oa.medicine oa.patients oa.partial oa.privacy oa.lay
The Health care data sharing rule and its roots at Boston Children's Hospital - Discoveries

https://discoveries.childrenshospital.org/health-care-data-sharing-rule/

petersuber's tagged items 12/29/2020

oa.new oa.data oa.medicine oa.patients oa.privacy oa.lay
Open Science to Address COVID-19: Sharing Data to Make Our Research Investment Go Further | SpringerLink

https://link.springer.com/article/10.1007%2Fs43441-020-00250-z

petersuber's tagged items 01/05/2021

oa.new oa.medicine oa.data oa.fair oa.recommendations oa.privacy oa.clinical_trials oa.pharma
WMA Declaration of Taipei on Ethical Considerations regarding Health Databases and Biobanks – WMA – The World Medical Association

https://www.wma.net/policies-post/wma-declaration-of-taipei-on-ethical-considerations-regarding-health-databases-and-biobanks/

petersuber's tagged items 10/01/2016

oa.wma oa.medicine oa.declarations oa.data oa.privacy oa.consent oa.ethics oa.specimens
NIH Guide: FINAL NIH STATEMENT ON SHARING RESEARCH DATA

https://grants.nih.gov/grants/guide/notice-files/NOT-OD-03-032.html

petersuber's tagged items 02/26/2003

oa.nih oa.usa oa.usa.nih oa.medicine oa.data oa.privacy oa.consultations
Balancing Privacy With Data Sharing for the Public Good - The New York Times

https://www.nytimes.com/2021/02/19/business/privacy-open-data-public.html

petersuber's tagged items 02/20/2021

oa.new oa.medicine oa.privacy oa.benefits oa.risks oa.psi oa.data
Large-scale ICU data sharing for global collaboration: the first 1633 critically ill COVID-19 patients in the Dutch Data Warehouse | SpringerLink

https://link.springer.com/article/10.1007%2Fs00134-021-06361-x

petersuber's tagged items 02/22/2021

oa.new oa.medicine oa.data oa.humanitarian oa.netherlands oa.privacy
Openness in Big Data and Data Repositories | SpringerLink

https://link.springer.com/article/10.1007%2Fs41649-019-00097-z

petersuber's tagged items 03/24/2021

oa.new oa.data oa.repositories.data oa.open_science oa.ethics oa.privacy oa.medicine oa.repositories
Prevalence of Medical Journal Websites That Deny Access to Users Who Block Browser Cookies | Medical Journals and Publishing | JAMA Network Open | JAMA Network

https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2777868

petersuber's tagged items 03/31/2021

oa.new oa.medicine oa.obstacles oa.negative oa.journals oa.privacy
genomeRxiv: a microbial whole-genome database for classification, identification, and data sharing

https://figshare.com/articles/poster/genomeRxiv_a_microbial_whole-genome_database_for_classification_identification_and_data_sharing/14376350/2

petersuber's tagged items 04/26/2021

oa.new oa.genomerxiv oa.medicine oa.usa oa.uk oa.data oa.repositories.data oa.environment oa.privacy oa.security oa.repositories
Joint Statement on transparency and data integrity International Coalition of Medicines Regulatory Authorities (ICMRA) and WHO

https://www.who.int/news/item/07-05-2021-joint-statement-on-transparency-and-data-integrityinternational-coalition-of-medicines-regulatory-authorities-(icmra)-and-who

petersuber's tagged items 05/08/2021

oa.new oa.who oa.medicine oa.clinical_trials oa.industry oa.icmra oa.privacy oa.quality oa.speed oa.risks oa.pharma

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