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Items: 16 total

Balancing Privacy With Data Sharing for the Public Good - The New York Times

https://www.nytimes.com/2021/02/19/business/privacy-open-data-public.html

petersuber's tagged items 02/20/2021

oa.new oa.medicine oa.privacy oa.benefits oa.risks oa.psi oa.data
Large-scale ICU data sharing for global collaboration: the first 1633 critically ill COVID-19 patients in the Dutch Data Warehouse | SpringerLink

https://link.springer.com/article/10.1007%2Fs00134-021-06361-x

petersuber's tagged items 02/22/2021

oa.new oa.medicine oa.data oa.humanitarian oa.netherlands oa.privacy
Openness in Big Data and Data Repositories | SpringerLink

https://link.springer.com/article/10.1007%2Fs41649-019-00097-z

petersuber's tagged items 03/24/2021

oa.new oa.data oa.repositories.data oa.open_science oa.ethics oa.privacy oa.medicine oa.repositories
Prevalence of Medical Journal Websites That Deny Access to Users Who Block Browser Cookies | Medical Journals and Publishing | JAMA Network Open | JAMA Network

https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2777868

petersuber's tagged items 03/31/2021

oa.new oa.medicine oa.obstacles oa.negative oa.journals oa.privacy
genomeRxiv: a microbial whole-genome database for classification, identification, and data sharing

https://figshare.com/articles/poster/genomeRxiv_a_microbial_whole-genome_database_for_classification_identification_and_data_sharing/14376350/2

petersuber's tagged items 04/26/2021

oa.new oa.genomerxiv oa.medicine oa.usa oa.uk oa.data oa.repositories.data oa.environment oa.privacy oa.security oa.repositories
Joint Statement on transparency and data integrity International Coalition of Medicines Regulatory Authorities (ICMRA) and WHO

https://www.who.int/news/item/07-05-2021-joint-statement-on-transparency-and-data-integrityinternational-coalition-of-medicines-regulatory-authorities-(icmra)-and-who

petersuber's tagged items 05/08/2021

oa.new oa.who oa.medicine oa.clinical_trials oa.industry oa.icmra oa.privacy oa.quality oa.speed oa.risks oa.pharma
Balancing Privacy and Open Science in the Context of COVID-19: A Response to Ifenthaler & Schumacher (2016)

http://bretsw.com/publication/rosenberg_staudtwillet_inpress/

openacrs's tagged items 10/20/2020

oa.open_science oa.ethics oa.privacy oa.humanitarian oa.medicine
Clinicians open their notes to patients in grand experiment in medical care

https://www.statnews.com/2021/06/18/clinicians-open-their-notes-to-patients-in-a-grand-experiment-in-medical-care/

petersuber's tagged items 06/19/2021

oa.medicine oa.new oa.patients oa.privacy oa.lay
Data Sharing of Imaging in an Evolving Health Care World: Report of the ACR Data Sharing Workgroup Part 2: Annotation, Curation, and Contracting - Journal of the American College of Radiology

https://www.jacr.org/article/S1546-1440(21)00581-0/fulltext

petersuber's tagged items 10/12/2021

oa.new oa.data oa.medicine oa.privacy oa.implementation
Full article: Open science and sharing personal data widely – legally impossible for Europeans?

https://www.tandfonline.com/doi/full/10.1080/0284186X.2021.1995894

petersuber's tagged items 11/24/2021

oa.new oa.data oa.privacy oa.medicine oa.europe oa.gdpr oa.legislation oa.journals oa.policies oa.policies.journals.data
Nightingale Open Science

https://www.nightingalescience.org/

petersuber's tagged items 12/16/2021

oa.nightingale oa.open_science oa.data oa.medicine oa.platforms oa.images oa.privacy oa.infrastructure oa.cloud oa.new
Apropos Data Sharing: Abandon the Distrust and Embrace the Opportunity | DNA and Cell Biology

https://www.liebertpub.com/doi/10.1089/dna.2021.0501

petersuber's tagged items 12/30/2021

oa.new oa.data oa.ethics oa.medicine oa.biomedicine oa.europe oa.gdpr oa.privacy oa.open_science
The importance of transparency and openness in research data to drive patient benefit—Examples from the United Kingdom

https://onlinelibrary.wiley.com/doi/epdf/10.1002/leap.1436

petersuber's tagged items 03/19/2022

oa.new oa.data oa.privacy oa.medicine oa.patients oa.lay
Solving medicine’s data bottleneck: Nightingale Open Science | Nature Medicine

https://www.nature.com/articles/s41591-022-01804-4

petersuber's tagged items 05/19/2022

oa.tools oa.privacy oa.platforms oa.open_science oa.nonprofit oa.nightingale oa.new oa.medicine oa.infrastructure oa.data
A blockchain-based infection tracing and notification system by non-fungible tokens - ScienceDirect

https://www.sciencedirect.com/science/article/pii/S0140366422001797?via%3Dihub

petersuber's tagged items 06/13/2022

oa.new oa.medicine oa.blockchain oa.privacy oa.data
OSF Preprints | Open science practices in psychiatric genetics: a primer

https://osf.io/njfrt

petersuber's tagged items 08/06/2022

oa.new oa.open_science oa.psychology oa.medicine oa.reproducibility oa.guidelines oa.data oa.preregistration oa.privacy oa.ssh

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