Are huge genetic databases leaving marginalized people out of their data? | Salon.com
peter.suber's bookmarks 2019-12-02
"However, as promising as biobanks might seem, the data may tell only partial or even misleading stories. Criticisms of the project include that the research coming out of the UK Biobank will only benefit certain people, and even then, the usefulness of the health associations found are under question.
Compared to the 2011 UK census, Black, Indian, Pakistani and Chinese participants are all underrepresented in the Biobank by at least one third. David Curtis, at University College London, tested whether this under-representation of ethnic minority groups has any impact on schizophrenia genetics research...."