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Tag "oa.patients" – 94 items

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Open access to pathology reports: potential harms and proposed solutions: Journal of Communication in Healthcare: Vol 0, No 0 - Get Access

https://www.tandfonline.com/doi/full/10.1080/17538068.2025.2462426

petersuber's tagged items 02/16/2025

oa.new oa.medicine oa.risks oa.patients oa.lay oa.benefits oa.harm oa.communication_studies
Data management and sharing

https://www.jclinepi.com/article/S0895-4356(25)00013-7/pdf

petersuber's tagged items 01/30/2025

oa.new oa.data oa.fair oa.dmp oa.obstacles oa.attitudes oa.culture oa.biomedicine oa.biology oa.medicine oa.patients oa.recommendations oa.implementation oa.lay oa.communication_studies
The BMJ will remunerate patient and public reviewers | The BMJ

https://www.bmj.com/content/387/bmj.q2581

petersuber's tagged items 12/01/2024

oa.new oa.bmj oa.journals oa.economics_of oa.peer_review oa.patients oa.lay oa.medicine
More medical journals must work in partnership with patients and the public | The BMJ

https://www.bmj.com/content/386/bmj.q1463

petersuber's tagged items 07/14/2024

oa.new oa.journals oa.medicine oa.patients oa.lay
Immediate Access to Radiology Reports: Perspectives on X Before and After the Cures Act Information Blocking Provision - Journal of the American College of Radiology

https://www.jacr.org/article/S1546-1440(23)01034-7/abstract

petersuber's tagged items 07/07/2024

oa.new oa.patients oa.lay oa.embargoes oa.medicine oa.social_media oa.attitudes
JCF Patient Focus – Lay Summaries for Key Manuscripts Contextualizing Science for Those Who Matter Most: From Paper to Patient - Journal of Cardiac Failure

https://onlinejcf.com/article/S1071-9164(24)00142-8/fulltext

petersuber's tagged items 05/19/2024

oa.new oa.summaries oa.lay oa.patients oa.medicine oa.case oa.case.journals
How to involve the public in knowledge mobilisation

https://evidence.nihr.ac.uk/collection/how-to-involve-the-public-in-knowledge-mobilisation/

petersuber's tagged items 03/27/2024

oa.new oa.uk oa.nihr oa.lay oa.patients
Bridging the gap between scientific research of rare diseases and the affected patients and families: Journal of Communication in Healthcare: Vol 0, No 0

https://www.tandfonline.com/doi/full/10.1080/17538068.2024.2309708

petersuber's tagged items 02/04/2024

oa.new oa.recommendations oa.lay oa.patients oa.medicine oa.biomedicine
Plain language summaries – a writer reflects | Open Pharma summit 2023 - YouTube

https://www.youtube.com/watch?v=ZT-3Jqx76Es&t=1s

petersuber's tagged items 02/01/2024

oa.new oa.lay oa.patients oa.medicine oa.video oa.pls oa.intelligibility
Five Companies Sign Agreement to Participate in National Health Data-Sharing Network | MedPage Today

https://www.medpagetoday.com/practicemanagement/informationtechnology/107823?xid=nl_mpt_morningbreak2023-12-13&eun=g2170552d0r

petersuber's tagged items 12/15/2023

oa.new oa.medicine oa.privacy oa.patients oa.usa oa.lay
Exploring how members of the public access and use health research and information: a scoping review - PMC

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10629152/

petersuber's tagged items 11/19/2023

oa.new oa.lay oa.patients oa.medicine
Exploring how members of the public access and use health research and information: a scoping review | BMC Public Health | Full Text

https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-023-16918-8

petersuber's tagged items 11/12/2023

oa.new oa.medicine oa.lay oa.obstacles oa.patients
Patient partnership at BMJ

https://www.bmj.com/content/383/bmj.p2505

petersuber's tagged items 11/06/2023

oa.new oa.medicine oa.bmj oa.patients oa.authors oa.fees oa.waivers oa.lay
Use of plain language summaries in anaesthesia journals - Keane - Anaesthesia - Wiley Online Library

https://associationofanaesthetists-publications.onlinelibrary.wiley.com/doi/10.1111/anae.16138

petersuber's tagged items 10/15/2023

oa.new oa.medicine oa.lay oa.pls oa.summaries oa.journals oa.patients oa.recommendations oa.policies oa.policies.journals
What do Australians affected by cancer think about oncology researchers sharing research data: a cross-sectional survey | medRxiv

https://www.medrxiv.org/content/10.1101/2023.05.01.23289334v1

petersuber's tagged items 09/05/2023

oa.new oa.australia oa.patients oa.surveys oa.medicine oa.data oa.lay
Data sharing implementation in top 10 ophthalmology journals in 2021 | BMJ Open Ophthalmology

https://bmjophth.bmj.com/content/8/1/e001276

petersuber's tagged items 07/30/2023

oa.new oa.data oa.implementation oa.medicine oa.journals oa.patients oa.privacy oa.policies oa.compliance oa.clinical_trials oa.lay
Data sharing in the context of community-engaged research partnerships - ScienceDirect

https://www.sciencedirect.com/science/article/pii/S0277953623002526

petersuber's tagged items 04/23/2023

oa.new oa.data oa.lay oa.citizen_science oa.communities oa.recommendations oa.principles oa.funders oa.impact oa.medicine oa.nih oa.usa oa.usa.nih oa.patients
Patients at the Heart of the Scientific Dialogue: An Industry Perspective | SpringerLink

https://link.springer.com/article/10.1007/s40487-023-00220-z

petersuber's tagged items 01/29/2023

oa.new oa.patients oa.lay oa.pharma oa.industry oa.medicine oa.intelligibility
Supporting patient and public partners in writing lay summaries of scientific evidence in healthcare: a scoping review protocol | BMJ Open

https://bmjopen.bmj.com/content/12/12/e062981

petersuber's tagged items 12/18/2022

oa.new oa.lay oa.medicine oa.summaries oa.patients
NIH’s All of Us Research Program returns genetic health-related results to participants | National Institutes of Health (NIH)

https://www.nih.gov/news-events/news-releases/nih-s-all-us-research-program-returns-genetic-health-related-results-participants

petersuber's tagged items 12/15/2022

oa.new oa.nih oa.usa oa.usa.nih oa.patients oa.medicine oa.lay
Methodology over metrics: current scientific standards are a disservice to patients and society - Journal of Clinical Epidemiology

https://www.jclinepi.com/article/S0895-4356(21)00170-0/fulltext

petersuber's tagged items 11/21/2022

oa.new oa.metrics oa.patients oa.medicine oa.quality oa.recommendations oa.preregistration oa.lay
Open access: The universal norm? | Research Information

https://www.researchinformation.info/analysis-opinion/open-access-universal-norm

petersuber's tagged items 11/01/2022

oa.new oa.medicine oa.lay oa.patients oa.occ oa.climate oa.no-fee oa.business_models oa.dei
Open science and data sharing in trauma research: Developing a trauma-informed protocol for archiving sensitive qualitative data. - PsycNET

https://psycnet.apa.org/doiLanding?doi=10.1037%2Ftra0001358

petersuber's tagged items 09/12/2022

oa.new oa.open_science oa.data oa.medicine oa.privacy oa.consent oa.patients oa.lay oa.psychology oa.ssh
Doing research as if participants mattered | Impact of Social Sciences

https://blogs.lse.ac.uk/impactofsocialsciences/2022/07/11/doing-research-as-if-participants-mattered/

petersuber's tagged items 09/05/2022

oa.new oa.medicine oa.patients oa.privacy oa.consent oa.data oa.reuse oa.lay
Helen Salisbury: Unintended consequences of open access to medical notes | The BMJ

https://www.bmj.com/content/377/bmj.o1570

petersuber's tagged items 07/03/2022

oa.new oa.medicine oa.lay oa.patients oa.risks