NIH Requests Information on Developing Consent Language for Future Use of Data and Biospecimens | Data Science at NIH

"Today, the National Institutes of Health (NIH) announced a Request for Information (RFI) on the utility and useability of Consent for Data and Biospecimen Sharing for Future Use: Points to Consider and Sample Language. NIH has heard from its stakeholders that there is a strong interest in sharing best practices for developing informed consent language that supports sharing and NIH has worked to develop points to consider and sample language to assist in this endeavor. NIH emphasizes that any use of the sample informed consent language would be completely voluntary and will not be required."