NOT-OD-17-110: Request for Comments: Proposal to Update Data Management of Genomic Summary Results Under the NIH Genomic Data Sharing Policy

"The National Institutes of Health (NIH) is seeking public comments regarding a proposed update to the access procedures for genomic summary results under the Genomic Data Sharing (GDS) Policy.1 Genomic summary results, also known as ‘aggregate genomic data’2 or ‘genomic summary statistics’ 3, are results from primary analyses of genomic research that convey information relevant to understanding genomic associations with traits or diseases across datasets rather than data specific to any one individual research participant. The goal of this proposed data management update is to provide access to genomic summary results through methods proportional to the risks and benefits posed by this type of information."