Why Are We Working So Hard to Open up Science? A Personal Story.
Amyluv's bookmarks 2017-12-17
"In the Fall of 2011, Sarah Mackenzie, the maid of honor at my wedding, was diagnosed with a rare form of ovarian cancer. Sarah and her family were motivated to learn as much as they could about the disease to advocate for her care. They weren’t scientists, but they started searching the literature for relevant articles. One evening, Sarah called us, angry. Every time she found an article that might be relevant to understanding her disease, she ran into a paywall requiring $15-$40 to access it. Public money had paid for the research, yet she was barred from making any use of it. Luckily, she had us. Most people in Sarah’s position don’t have the luxury of friends at wealthy academic institutions with subscriptions to the literature."