Registered access: authorizing data access | European Journal of Human Genetics

ab1630's bookmarks 2018-08-02


"Abstract: The Global Alliance for Genomics and Health (GA4GH) proposes a data access policy model—“registered access”—to increase and improve access to data requiring an agreement to basic terms and conditions, such as the use of DNA sequence and health data in research. A registered access policy would enable a range of categories of users to gain access, starting with researchers and clinical care professionals. It would also facilitate general use and reuse of data but within the bounds of consent restrictions and other ethical obligations. In piloting registered access with the Scientific Demonstration data sharing projects of GA4GH, we provide additional ethics, policy and technical guidance to facilitate the implementation of this access model in an international setting...."

Registered access: authorizing data access

Stephanie O. M. Dyke, Mikael Linden, […]Paul Flicek 

European Journal of Human Genetics (2018)



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Tags: oa.policies oa.access oa.privacy oa.medicine oa.genomics oa.open_science oa.stem oa.ethics

Date tagged:

08/02/2018, 12:19

Date published:

08/02/2018, 08:19