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Items: 25 total

Cautionary Note on Data Sharing | Circulation: Cardiovascular Quality and Outcomes

https://www.ahajournals.org/doi/10.1161/CIRCOUTCOMES.124.010257

petersuber's tagged items 09/24/2024

oa.new oa.data oa.risks oa.clinical_trials oa.pharma oa.medicine oa.privacy oa.ethics oa.consent oa.quality oa.objections oa.debates
Parent attitudes towards data sharing in developmental science

https://open-research-europe.ec.europa.eu/articles/3-182/v2

petersuber's tagged items 07/23/2024

oa.new oa.data oa.psychology oa.consent oa.privacy oa.recommendations oa.repositories oa.repositories.data oa.paywalled oa.ssh oa.surveys oa.medicine
Five Companies Sign Agreement to Participate in National Health Data-Sharing Network | MedPage Today

https://www.medpagetoday.com/practicemanagement/informationtechnology/107823?xid=nl_mpt_morningbreak2023-12-13&eun=g2170552d0r

petersuber's tagged items 12/15/2023

oa.new oa.medicine oa.privacy oa.patients oa.usa oa.lay
Healthcare research data sharing and academic journal: A cha... : Indian Journal of Anaesthesia

https://journals.lww.com/ijaweb/fulltext/2023/67090/healthcare_research_data_sharing_and_academic.1.aspx

petersuber's tagged items 10/15/2023

oa.new oa.data oa.medicine oa.journals oa.privacy oa.consent
OBIA: An Open Biomedical Imaging Archive - ScienceDirect

https://www.sciencedirect.com/science/article/pii/S1672022923001080

petersuber's tagged items 10/15/2023

oa.new oa.biology oa.medicine oa.biomedicine oa.images oa.ai oa.repositories oa.repositories.data oa.data oa.privacy
Data sharing implementation in top 10 ophthalmology journals in 2021 | BMJ Open Ophthalmology

https://bmjophth.bmj.com/content/8/1/e001276

petersuber's tagged items 07/30/2023

oa.new oa.data oa.implementation oa.medicine oa.journals oa.patients oa.privacy oa.policies oa.compliance oa.clinical_trials oa.lay
Frontiers | Toward an open access genomics database of South Africans: ethical considerations

https://www.frontiersin.org/articles/10.3389/fgene.2023.1166029/full

petersuber's tagged items 06/04/2023

oa.south_africa oa.south oa.privacy oa.new oa.medicine oa.ethics oa.data oa.consent oa.africa
Researchers Forget to Report How to Share Data From Studies Published in Spanish Medical Journals - ScienceDirect

https://www.sciencedirect.com/science/article/pii/S0300289623000285

petersuber's tagged items 03/13/2023

oa.new oa.icmje oa.data oa.clinical_trials oa.policies oa.mandates oa.pharma oa.medicine oa.negative oa.spain oa.journals oa.recommendations oa.privacy
Biological mechanisms discovery by globally-distributed research force - EuroScientist journal

https://www.euroscientist.com/biological-mechanisms-discovery-globally-distributed-research-force/

petersuber's tagged items 04/27/2016

oa.privacy oa.economics_of oa.business_models oa.open_science oa.medicine
Data sharing and management in 21st century cancer research - Ryan - Molecular Oncology - Wiley Online Library

https://febs.onlinelibrary.wiley.com/doi/10.1002/1878-0261.13385

petersuber's tagged items 02/19/2023

oa.new oa.data oa.medicine oa.social_media oa.privacy
Open science is in the interest of all professionals | Openjournals.nl

https://openjournals.nl/index.php/2023/01/25/open-science-is-in-the-interest-of-all-professionals/

petersuber's tagged items 01/27/2023

oa.new oa.open_science oa.medicine oa.privacy oa.gold oa.journals
An iterative and interdisciplinary categorisation process towards FAIRer digital resources for sensitive life-sciences data | Scientific Reports

https://www.nature.com/articles/s41598-022-25278-z

petersuber's tagged items 01/24/2023

oa.tools oa.privacy oa.new oa.medicine oa.interoperability oa.infrastructure oa.fair oa.discoverability oa.data oa.biology
Opinion: Why we’re becoming a Digital Public Good — and why we aren’t | Devex

https://www.devex.com/news/sponsored/opinion-why-we-re-becoming-a-digital-public-good-and-why-we-aren-t-104584

petersuber's tagged items 01/23/2023

oa.sustainability oa.standards oa.south oa.privacy oa.platforms oa.new oa.medicine oa.infrastructure oa.floss oa.data oa.ai oa.data oa.africa
The evolving role of research ethics committees in the era of open data | South African Journal of Bioethics and Law

https://samajournals.co.za/index.php/sajbl/article/view/578

petersuber's tagged items 01/08/2023

oa.south_africa oa.south oa.privacy oa.new oa.medicine oa.ethics oa.data oa.africa
Protecting User Privacy and Rights in Academic Data-Sharing Partnerships: Principles From a Pilot Program at Crisis Text Line

https://www.jmir.org/2019/1/e11507/

petersuber's tagged items 12/14/2022

oa.new oa.data oa.privacy oa.medicine oa.case
Producing Open Data

https://riojournal.com/article/86384/element/8/154212/

petersuber's tagged items 11/17/2022

oa.data oa.new oa.privacy oa.best_practices oa.biology oa.medicine oa.humanities oa.guidance oa.training oa.ssh
Open science and data sharing in trauma research: Developing a trauma-informed protocol for archiving sensitive qualitative data. - PsycNET

https://psycnet.apa.org/doiLanding?doi=10.1037%2Ftra0001358

petersuber's tagged items 09/12/2022

oa.new oa.open_science oa.data oa.medicine oa.privacy oa.consent oa.patients oa.lay oa.psychology oa.ssh
Journal of Medical Internet Research - A Study of Publicly Available Resources Addressing Legal Data-Sharing Barriers: Systematic Assessment

https://www.jmir.org/2022/9/e39333/

petersuber's tagged items 09/07/2022

oa.new oa.law oa.data oa.obstacles oa.usa oa.medicine oa.privacy
Doing research as if participants mattered | Impact of Social Sciences

https://blogs.lse.ac.uk/impactofsocialsciences/2022/07/11/doing-research-as-if-participants-mattered/

petersuber's tagged items 09/05/2022

oa.new oa.medicine oa.patients oa.privacy oa.consent oa.data oa.reuse oa.lay
OSF Preprints | Open science practices in psychiatric genetics: a primer

https://osf.io/njfrt

petersuber's tagged items 08/06/2022

oa.new oa.open_science oa.psychology oa.medicine oa.reproducibility oa.guidelines oa.data oa.preregistration oa.privacy oa.ssh
A blockchain-based infection tracing and notification system by non-fungible tokens - ScienceDirect

https://www.sciencedirect.com/science/article/pii/S0140366422001797?via%3Dihub

petersuber's tagged items 06/13/2022

oa.new oa.medicine oa.blockchain oa.privacy oa.data
Solving medicine’s data bottleneck: Nightingale Open Science | Nature Medicine

https://www.nature.com/articles/s41591-022-01804-4

petersuber's tagged items 05/19/2022

oa.tools oa.privacy oa.platforms oa.open_science oa.nonprofit oa.nightingale oa.new oa.medicine oa.infrastructure oa.data
The importance of transparency and openness in research data to drive patient benefit—Examples from the United Kingdom

https://onlinelibrary.wiley.com/doi/epdf/10.1002/leap.1436

petersuber's tagged items 03/19/2022

oa.new oa.data oa.privacy oa.medicine oa.patients oa.lay
Apropos Data Sharing: Abandon the Distrust and Embrace the Opportunity | DNA and Cell Biology

https://www.liebertpub.com/doi/10.1089/dna.2021.0501

petersuber's tagged items 12/30/2021

oa.new oa.data oa.ethics oa.medicine oa.biomedicine oa.europe oa.gdpr oa.privacy oa.open_science
Nightingale Open Science

https://www.nightingalescience.org/

petersuber's tagged items 12/16/2021

oa.nightingale oa.open_science oa.data oa.medicine oa.platforms oa.images oa.privacy oa.infrastructure oa.cloud oa.new

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