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Items: 25 total

Focus on Poverty: Sharing genetic data in health crises - SciDev.Net

http://m.scidev.net/index.cfm?originalUrl=global/data/analysis-blog/genetic-data-health.html

abernard102's tagged items 04/02/2015

oa.new oa.comment oa.data oa.privacy oa.standards oa.lay oa.biomedicine oa.pharma oa.genomics oa.open_science oa.americansocietyofcriminology oa.medicine
'Research corporations' using patient data without consent | Modern Healthcare

http://www.modernhealthcare.com/article/20140912/NEWS/309129927

abernard102's tagged items 09/14/2014

oa.new oa.comment oa.lay oa.privacy oa.data oa.americansocietyofcriminology oa.medicine
Genes | Free Full-Text | Open Access Data Sharing in Genomic Research

http://www.mdpi.com/2073-4425/5/3/739

abernard102's tagged items 08/30/2014

oa.new oa.mdpi oa.medicine oa.genomics oa.policies oa.privacy oa.lay oa.americansocietyofcriminology
The Michael J. Fox Foundation and Intel Join Forces to Improve Parkinson's Disease Monitoring and Treatment Through Advanced Technologies | 4-Traders

http://www.4-traders.com/INTEL-CORPORATION-4829/news/Intel--The-Michael-J-Fox-Foundation-and-Intel-Join-Forces-to-Improve-Parkinsons-Disease-Monitorin-18902185/

petersuber's tagged items 08/15/2014

oa.new oa.medicine oa.funders oa.data oa.privacy
The NHS plan to share our medical data can save lives – but must be done right | Ben Goldacre | Society | The Guardian

http://www.theguardian.com/society/2014/feb/21/nhs-plan-share-medical-data-save-lives

nancypontika's tagged items 07/14/2014

ru.sparc oa.new oa.comment oa.uk oa.nhs oa.usa oa.nsa oa.psi oa.privacy oa.security oa.lay oa.government oa.data oa.americansocietyofcriminology oa.medicine
Not So Open: Redefining Goals for Sharing Health Data in Research | EMR and HIPAA

http://www.emrandhipaa.com/guest/2014/06/24/not-so-open-redefining-goals-for-sharing-health-data-in-research/

abernard102's tagged items 06/26/2014

oa.new oa.comment oa.data oa.policies oa.privacy oa.best_practices oa.americansocietyofcriminology oa.medicine
Guest column: How open data is revolutionizing health

http://fedscoop.com/guest-column-open-data-revolutionizing-health/

abernard102's tagged items 05/05/2014

oa.new oa.comment oa.usa oa.government oa.psi oa.privacy oa.data oa.americansocietyofcriminology oa.medicine
NO2ID • View topic - Guardian: The NHS plan to share our medical data can save ..

http://forum.no2id.net/viewtopic.php?f=58&t=39535

abernard102's tagged items 02/24/2014

oa.new oa.comment oa.uk oa.nhs oa.usa oa.nsa oa.psi oa.privacy oa.security oa.lay oa.government oa.data oa.americansocietyofcriminology oa.medicine
Clinical research and open data | NIHR Clinical Research Network partner zone | theguardian.com

http://www.theguardian.com/healthcare-network/nihr-crn-partner-zone/clinical-research-open-data

abernard102's tagged items 01/29/2014

oa.privacy oa.policies oa.government oa.uk oa.nihr oa.medicine oa.data oa.new ru.sparc oa.americansocietyofcriminology
Do Drugmaker Plans To Release Trial Data Go Far Enough? - Forbes

http://www.forbes.com/sites/edsilverman/2013/12/07/do-drugmaker-plans-to-release-trial-data-go-far-enough/

abernard102's tagged items 12/08/2013

oa.medicine oa.new oa.data oa.policies oa.comment oa.europe oa.biomedicine oa.privacy oa.clinical_trials oa.ema oa.glaxosmithkline oa.pfizer oa.pharma oa.americansocietyofcriminology
Open-access genomics database causes hand-wringing in U.K. - FierceBiotechIT

http://www.fiercebiotechit.com/story/open-access-genomics-database-causes-hand-wringing-uk/2013-11-11

abernard102's tagged items 11/12/2013

oa.medicine oa.new oa.comment oa.government oa.crowd oa.uk oa.funders oa.wellcome oa.lay oa.biomedicine oa.privacy oa.genomics oa.illumina oa.pgp-uk oa.genomics_england oa.americansocietyofcriminology
Expanding access to clinical trial data responsibly

http://www.sciencedaily.com/releases/2013/10/131021211716.htm

abernard102's tagged items 10/24/2013

oa.medicine oa.new oa.data oa.policies oa.comment oa.usa oa.europe oa.recommendations oa.biomedicine oa.privacy oa.harvard.u oa.clinical_trials oa.ema oa.fda oa.reports oa.pharma oa.americansocietyofcriminology
Harvard researchers, pharma experts offer recommendations to expand access to clinical trial data | Science Codex

http://www.sciencecodex.com/harvard_researchers_pharma_experts_offer_recommendations_to_expand_access_to_clinical_trial_data-121428

abernard102's tagged items 10/23/2013

oa.medicine oa.new oa.data oa.policies oa.comment oa.usa oa.europe oa.reports oa.recommendations oa.biomedicine oa.privacy oa.harvard.u oa.clinical_trials oa.ema oa.fda oa.pharma oa.americansocietyofcriminology
Balancing privacy with public benefit : Nature News & Comment

http://www.nature.com/news/balancing-privacy-with-public-benefit-1.13506

abernard102's tagged items 08/09/2013

oa.medicine oa.new oa.data oa.npg oa.policies oa.comment oa.crowd oa.biomedicine oa.privacy oa.clinical_trials oa.surveys oa.pharma oa.americansocietyofcriminology
New clinical trial data sharing principles agreed

http://www.out-law.com/en/articles/2013/august/new-clinical-trial-data-sharing-principles-agreed-/

abernard102's tagged items 08/07/2013

oa.medicine oa.new oa.data oa.policies oa.comment oa.usa oa.europe oa.biomedicine oa.privacy oa.clinical_trials oa.efpia oa.pharma oa.americansocietyofcriminology
As Sharing of Clinical-Trial Data Gains Acceptance, Methods Get Scrutiny - Percolator - The Chronicle of Higher Education

http://chronicle.com/blogs/percolator/as-sharing-of-clinical-trial-data-gains-acceptance-methods-get-scrutiny/33247

abernard102's tagged items 08/06/2013

oa.medicine oa.new oa.data oa.comment oa.usa oa.nih oa.biomedicine oa.privacy oa.glaxosmithkline oa.itn oa.clinical_trials oa.pharma oa.americansocietyofcriminology
How should clinical trial data be shared? | BMJ

http://www.bmj.com/content/347/bmj.f4465?ijkey=gLoXxfN1QGG6JYp&keytype=ref&utm_source=buffer&utm_campaign=Buffer&utm_content=buffer8b4d4&utm_medium=twitter

abernard102's tagged items 07/16/2013

oa.medicine oa.new oa.data oa.licensing oa.comment oa.usa oa.copyright oa.best_practices oa.patents oa.biomedicine oa.privacy oa.bmj oa.libre oa.clinical_trials oa.pharma oa.americansocietyofcriminology
NIMH · Open Data

http://www.nimh.nih.gov/about/director/2013/open-data.shtml

abernard102's tagged items 06/16/2013

oa.medicine oa.new oa.psi oa.policies oa.comment oa.government oa.usa oa.green oa.neuro oa.psychology oa.biomedicine oa.privacy oa.clinical_trials oa.obama_directive oa.nimh oa.repositories oa.data oa.pharma oa.ssh oa.americansocietyofcriminology
Geneticists push for global data-sharing : Nature News & Comment

http://www.nature.com/news/geneticists-push-for-global-data-sharing-1.13133

abernard102's tagged items 06/06/2013

oa.medicine oa.new oa.data oa.comment oa.nih oa.advocacy oa.standards oa.wellcome oa.biomedicine oa.benefits oa.privacy oa.bgi oa.americansocietyofcriminology
Open Data Advocate Joins Patient Privacy Rights Group as Chief Technology Officer | The Doctor Weighs In

http://www.thedoctorweighsin.com/open-data-advocate-joins-patient-privacy-rights-group-as-chief-technology-officer/

petersuber's tagged items 05/27/2013

oa.medicine oa.new oa.data oa.people oa.privacy
European Medicines Agency - Document search - Access to documents

http://www.ema.europa.eu/ema/index.jsp?curl=pages/document_library/document_listing/document_listing_000312.jsp&mid=WC0b01ac0580022517

abernard102's tagged items 05/10/2013

oa.medicine oa.new oa.data oa.policies oa.comment oa.europe oa.biomedicine oa.privacy oa.clinical_trials oa.ema oa.medicine.veterinary oa.pharma oa.americansocietyofcriminology
One step forward for better evidence for healthcare… | Naturally Selected

http://blog.f1000.com/2013/05/07/one-step-forward-for-better-evidence/

abernard102's tagged items 05/09/2013

oa.medicine oa.new oa.data oa.licensing oa.comment oa.copyright oa.consultations oa.europe oa.standards oa.formats oa.f1000 oa.biomedicine oa.privacy oa.clinical_trials oa.ema oa.libre oa.pharma oa.americansocietyofcriminology
EuroBiotechNews: EMA may not publish trial data

http://www.eurobiotechnews.eu/news/news/2013-02/ema-may-not-publish-trial-data.html

abernard102's tagged items 05/03/2013

oa.medicine oa.new oa.data oa.policies oa.comment oa.europe oa.litigation oa.biomedicine oa.privacy oa.clinical_trials oa.ema oa.abbvie oa.intermune oa.pharma oa.americansocietyofcriminology
Clinical trials directive: The Parliament's political dilemna | EurActiv

http://www.euractiv.com/health/european-parliament-clinical-tri-analysis-518898

abernard102's tagged items 04/09/2013

oa.medicine oa.new oa.data oa.policies oa.licensing oa.comment oa.legislation oa.copyright oa.europe oa.standards oa.biomedicine oa.privacy oa.clinical_trials oa.ema oa.definitions oa.libre oa.pharma oa.americansocietyofcriminology
Genetic Alliance Announces Registries for All

http://lists.okfn.org/pipermail/open-science/2013-April/002353.html

petersuber's tagged items 04/06/2013

oa.medicine oa.new oa.data oa.privacy

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