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Items: 25 total

Responsible, practical genomic data sharing that accelerates research | Nature Reviews Genetics

https://www.nature.com/articles/s41576-020-0257-5

petersuber's tagged items 07/23/2020

oa.new oa.data oa.medicine oa.speed oa.biology oa.reproducibility oa.policies oa.privacy oa.best_practices oa.ethics oa.incentives
As data-sharing becomes more crucial, agencies say industry can help with privacy issues

https://www.fedscoop.com/data-privacy-government-cots-census-bureau/

petersuber's tagged items 07/10/2020

oa.new oa.data oa.medicine oa.humanitarian oa.privacy oa.industry oa.tools oa.obstacles
Assessing Open Access Audio - Full Text View - ClinicalTrials.gov

https://clinicaltrials.gov/ct2/show/NCT04452331

petersuber's tagged items 07/05/2020

oa.new oa.medicine oa.audio oa.privacy oa.quality
Privacy challenges and research opportunities for genomic data sharing | Nature Genetics

https://www.nature.com/articles/s41588-020-0651-0

petersuber's tagged items 07/01/2020

oa.new oa.medicine oa.privacy oa.data
Epidemiological data from the COVID-19 outbreak, real-time case information | Scientific Data

https://www.nature.com/articles/s41597-020-0448-0

petersuber's tagged items 06/01/2020

oa.new oa.data oa.medicine oa.humanitarian oa.privacy oa.dynamic
OpenSAFELY

https://opensafely.org/

petersuber's tagged items 05/11/2020

oa.new oa.data oa.uk oa.medicine oa.privacy oa.humanitarian oa.floss oa.speed
Open access to facilitate research and information on COVID-19

https://en.unesco.org/covid19/communicationinformationresponse/opensolutions

petersuber's tagged items 04/27/2020

oa.new oa.france oa.funders oa.medicine oa.open_science oa.oer oa.events oa.data oa.privacy oa.humanitarian oa.unesco
Consent for publishing patient photographs - ScienceDirect

https://www.sciencedirect.com/science/article/pii/S2214911220300242

petersuber's tagged items 04/12/2020

oa.new oa.medicine oa.images oa.photographs oa.privacy oa.licensing oa.libre oa.consent oa.patients oa.lay
Perspective on Data‐Sharing Requirements for the Necessary Evolution of Drug Development - Barrett - - The Journal of Clinical Pharmacology - Wiley Online Library

https://accp1.onlinelibrary.wiley.com/doi/full/10.1002/jcph.1607

petersuber's tagged items 04/05/2020

oa.new oa.data oa.mandates oa.pharmam oa.medicine oa.privacy oa.recommendations oa.policies
The power of data in a pandemic - Technology in the NHS

https://healthtech.blog.gov.uk/2020/03/28/the-power-of-data-in-a-pandemic/

petersuber's tagged items 03/29/2020

oa.new oa.data oa.uk oa.humanitarian oa.repositories.data oa.medicine oa.privacy oa.platforms oa.infrastructure oa.repositories
Can Data Sharing Become the Path of Least Resistance?

https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1001949

petersuber's tagged items 01/26/2016

oa.medicine oa.data oa.speed oa.humanitarian oa.recommendations oa.ingelfinger oa.ethics oa.privacy
Genomics: data sharing needs an international code of conduct

https://www.nature.com/articles/d41586-020-00082-9

openacrs's tagged items 02/05/2020

oa.new oa.data oa.genomics oa.ethics oa.privacy oa.policies oa.legislation oa.biology oa.medicine oa.americansocietyofcriminology
Big Data Biobanks Aren't Equally Open To Researchers : Shots - Health News : NPR

https://www.npr.org/sections/health-shots/2019/09/06/755402750/how-should-scientists-access-to-health-databanks-be-managed?linkId=75907090

petersuber's tagged items 09/06/2019

oa.data oa.medicine oa.privacy
HHS Secretary Azar blasts Epic's 'scare tactics' in opposition to data-sharing rules | FierceHealthcare

https://www.fiercehealthcare.com/tech/hhs-secretary-azar-blasts-epic-s-scare-tactics-to-drum-up-opposition-to-data-sharing-rules

petersuber's tagged items 01/29/2020

oa.new oa.usa oa.usa.hhs oa.data oa.medicine oa.privacy oa.lobbying
Epic's call to block a proposed data rule is wrong for many reasons - STAT

https://www.statnews.com/2020/01/27/epic-block-proposed-data-rule/

petersuber's tagged items 01/27/2020

oa.new oa.usa oa.negative oa.data oa.medicine oa.privacy oa.lobbying
3D Printing and the Murky Ethics of Replicating Bones

https://undark.org/2020/01/10/3d-bone-prints-south-africa/

petersuber's tagged items 01/12/2020

oa.new oa.3d oa.digitization oa.ethics oa.archaeology oa.medicine oa.privacy oa.anthropology oa.ssh oa.ssh
Ethics in medical education digital scholarship: AMEE Guide No. 134: Medical Teacher: Vol 0, No 0

https://www.tandfonline.com/doi/abs/10.1080/0142159X.2019.1695043?journalCode=imte20

petersuber's tagged items 12/15/2019

oa.new oa.ethics oa.medicine oa.data oa.privacy
Publishing in 2020: A checklist to support a shift in behaviour to achieve best practice - Cobey - - European Journal of Clinical Investigation - Wiley Online Library

https://onlinelibrary.wiley.com/doi/abs/10.1111/eci.13186

petersuber's tagged items 11/25/2019

oa.new oa.recommendations oa.best_practices oa.data oa.policies oa.incentives oa.medicine oa.privacy oa.paywalled
Data sharing from clinical trials: lessons from the YODA Project - STAT

https://www.statnews.com/2019/11/18/data-sharing-clinical-trials-lessons-yoda-project/

petersuber's tagged items 11/19/2019

oa.new oa.clinical_trials oa.data oa.medicine oa.yoda oa.yale.u oa.nih oa.policies oa.policies.funders oa.policies.data oa.case oa.case.data oa.industry oa.privacy oa.funders oa.pharma
Potential risks and solutions for sharing genome summary data from African populations | BMC Medical Genomics | Full Text

https://bmcmedgenomics.biomedcentral.com/articles/10.1186/s12920-019-0604-6

petersuber's tagged items 11/10/2019

oa.new oa.medicine oa.data oa.africa oa.risks oa.nih oa.privacy oa.south
The Personal Genome Project-UK, an open access resource of human multi-omics data | Scientific Data

https://www.nature.com/articles/s41597-019-0205-4

petersuber's tagged items 11/06/2019

oa.new oa.uk oa.medicine oa.privacy oa.consent oa.data oa.apis oa.cloud
The Genomics Research and Innovation Network: creating an interoperable, federated, genomics learning system | Genetics in Medicine

https://www.nature.com/articles/s41436-019-0646-3

petersuber's tagged items 09/05/2019

oa.new oa.data oa.medicine oa.privacy oa.case oa.tools oa.platforms oa.infrastructure oa.biology oa.specimens oa.floss
Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study | Jones | Journal of Medical Internet Research

https://www.jmir.org/2019/8/e14384/

petersuber's tagged items 08/26/2019

oa.new oa.surveys oa.attitudes oa.data oa.medicine oa.reuse oa.recommendations oa.privacy
HEAL Public Access and Data Sharing Policy | National Institutes of Health (NIH)

https://www.nih.gov/research-training/medical-research-initiatives/heal-initiative/research/heal-public-access-data-sharing-policy

petersuber's tagged items 08/24/2019

oa.new oa.nih oa.usa oa.data oa.funders.public oa.heal oa.policies.funders oa.medicine oa.repositories.data oa.infrastructure oa.mandates oa.dmp oa.privacy oa.repositories oa.policies oa.funders
Emerging technologies towards enhancing privacy in genomic data sharing | Genome Biology | Full Text

https://genomebiology.biomedcentral.com/articles/10.1186/s13059-019-1741-0

petersuber's tagged items 07/07/2019

oa.new oa.medicine oa.data oa.privacy

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