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Items: 25 total

Clinical Trial Participants’ Views of the Risks and Benefits of Data Sharing | NEJM

https://www.nejm.org/doi/full/10.1056/NEJMsa1713258

ab1630's tagged items 07/21/2018

oa.new oa.data oa.clinical_trials oa.surveys oa.attitudes oa.benefits oa.privacy oa.security oa.negative oa.medicine oa.pharma
Think you have remarkable memory traits? Share them by participating in the Harvard PGP-Lumosity Memory Challenge - Citizen Science Salon : Citizen Science Salon

http://blogs.discovermagazine.com/citizen-science-salon/2018/07/09/think-you-have-remarkable-memory-traits-share-them-by-participating-in-the-harvard-pgp-lumosity-memory-challenge/#.W0Ty-9VKhhF

petersuber's tagged items 07/10/2018

oa.new oa.medicine oa.biology oa.crowd oa.privacy oa.data oa.open_science hu.oa oa.lay
Ethical concerns on sharing genomic data including patients’ family members | BMC Medical Ethics | Full Text

https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-018-0310-5

ab1630's tagged items 06/20/2018

oa.new oa.stem oa.open_science oa.medicine oa.genomics oa.data oa.privacy oa.surveys oa.ethics oa.patients oa.lay
Blue Brain’s Samuel Kerrien presents at the Frontiers Data Services Workshop - Open Research Data to Support Sustainable Health Initiatives | EPFL

https://bluebrain.epfl.ch/page-156096-en.html

kirstine's tagged items 06/15/2018

oa.new oa.switzerland oa.publishers oa.presentations oa.medicine oa.data oa.tools oa.rdm oa.privacy oa.fair oa.eosc oa.policies.data oa.mandates oa.mandates.data oa.policies
FSI | CHP/PCOR - Most clinical trial participants find benefits outweigh risks in sharing personal data

https://healthpolicy.fsi.stanford.edu/news/most-clinical-trial-participants-find-benefits-outweigh-risks-sharing-personal-data

ab1630's tagged items 06/09/2018

oa.new oa.data oa.privacy oa.attitudes oa.open_science oa.stem oa.medicine oa.pharma oa.surveys
Frontiers | Brain-CODE: A Secure Neuroinformatics Platform for Management, Federation, Sharing and Analysis of Multi-Dimensional Neuroscience Data | Frontiers in Neuroinformatics

https://www.frontiersin.org/articles/10.3389/fninf.2018.00028/full

ab1630's tagged items 05/24/2018

oa.new oa.platforms oa.neuro oa.medicine oa.stem oa.open_science oa.data oa.green oa.repositories.data oa.access oa.interoperability oa.privacy oa.security oa.repositories
Gesundheitsakte: 5.000 Elga-Abmeldungen wegen Forschungsdaten-Debatte (5,000 Elga unsubscriptions for research data debate)

https://www.derstandard.de/story/2000079259475/5-000-elga-abmeldungen-wegen-forschungsdaten-debatte

kirstine's tagged items 05/18/2018

oa.austria oa.new oa.data oa.privacy oa.platforms oa.imfrastructure oa.funds oa.costs oa.discoverability oa.access oa.search oa.medicine oa.pharma oa.legislation oa.german
MIT, Stanford Project Protects Security of Genomic Data for Open Research -- Campus Technology

https://campustechnology.com/articles/2018/05/14/mit-stanford-project-protects-security-of-genomic-data-for-open-research.aspx

ab1630's tagged items 05/17/2018

oa.new oa.privacy oa.genomics oa.stem oa.open_science oa.data oa.medicine oa.crowd oa.paywalls oa.green oa.repositories.data oa.repositories
In the Open podcast - Episode 2 | The Lancet USA Blog

http://usa.thelancet.com/blog/2018-04-20-open-podcast-episode-2?utm_campaign=lancet&utm_content=70562049&utm_medium=social&utm_source=twitter

lkfitz's tagged items 05/11/2018

oa.new oa.audio oa.data oa.medicine oa.privacy oa.interviews oa.people
Frontiers in Big Data: A new open-access journal to lead the big data revolution | EurekAlert! Science News

https://www.eurekalert.org/pub_releases/2018-05/f-fib050318.php

ab1630's tagged items 05/04/2018

oa.new oa.stem oa.open_science oa.data oa.cs oa.gold oa.ai oa.mining oa.security oa.privacy oa.medicine oa.frontiers oa.journals
Recommendation on access to and preservation of Scientific Information | Digital Single Market

https://ec.europa.eu/digital-single-market/en/news/recommendation-access-and-preservation-scientific-information

ab1630's tagged items 04/26/2018

oa.new oa.europe oa.policies oa.preservation oa.recommendations oa.stem oa.open_science oa.economic_impact oa.development oa.psi oa.government oa.privacy oa.public_health oa.access oa.reuse oa.medicine oa.data
Scott Pruitt's New EPA Rule Would Transform the Agency - The Atlantic

https://www.theatlantic.com/science/archive/2018/04/how-the-epas-new-secret-science-rule/558878/

ab1630's tagged items 04/26/2018

oa.new oa.usa oa.law oa.legislation oa.policies oa.stem oa.open_science oa.epa oa.environment oa.geo oa.government oa.psi oa.access oa.privacy oa.public_health oa.climate oa.debates oa.reproducibility oa.medicine oa.data oa.openwashing
EU wants to boost data use and sharing in Digital Single Market - UK to miss out post-Brexit?

https://diginomica.com/2018/04/26/eu-wants-boost-data-use-sharing-digital-single-market-uk-miss-post-brexit/

ab1630's tagged items 04/26/2018

oa.new oa.uk oa.europe oa.policies oa.mandates.data oa.technology oa.stem oa.open_science oa.economic_impact oa.psi oa.government oa.privacy oa.public_health oa.access oa.reuse oa.interoperability oa.apis oa.medicine oa.data
EPA Administrator Pruitt Proposes Rule To Strengthen Science Used In EPA Regulations | U.S. EPA News Releases

https://www.epa.gov/newsreleases/epa-administrator-pruitt-proposes-rule-strengthen-science-used-epa-regulations

ab1630's tagged items 04/25/2018

oa.new oa.usa oa.law oa.legislation oa.policies oa.stem oa.open_science oa.epa oa.environment oa.geo oa.government oa.psi oa.access oa.privacy oa.public_health oa.climate oa.debates oa.reproducibility oa.medicine oa.data
Letter from 985 scientists to E. Scott Pruitt, April 23, 2018 | Re: Don’t Restrict EPA’s Ability to Rely on Science

https://s3.amazonaws.com/ucs-documents/science-and-democracy/secret-science-letter-4-23-2018.pdf

ab1630's tagged items 04/25/2018

oa.new oa.usa oa.legislation oa.policies oa.stem oa.open_science oa.epa oa.environment oa.geo oa.government oa.psi oa.access oa.privacy oa.public_health oa.climate oa.debates oa.authors oa.petitions oa.recommendations oa.medicine oa.data oa.openwashing
Bientôt moins de science à l’Agence américaine de l’environnement? | ICI.Radio-Canada.ca

https://ici.radio-canada.ca/nouvelle/1097153/scott-pruitt-epa-agence-protection-environnement-science-etudes-donnees-privees

ab1630's tagged items 04/25/2018

oa.new oa.usa oa.legislation oa.policies oa.stem oa.open_science oa.epa oa.environment oa.geo oa.government oa.psi oa.access oa.privacy oa.public_health oa.climate oa.debates oa.french oa.medicine oa.data oa.openwashing
Pruitt unveils controversial ‘transparency’ rule limiting what research EPA can use - The Washington Post

https://www.washingtonpost.com/news/energy-environment/wp/2018/04/24/pruitt-to-unveil-controversial-transparency-rule-limiting-what-research-epa-can-use/?noredirect=on&utm_term=.b7031754bb60

ab1630's tagged items 04/25/2018

oa.new oa.usa oa.legislation oa.policies oa.stem oa.open_science oa.epa oa.environment oa.geo oa.government oa.psi oa.access oa.privacy oa.public_health oa.climate oa.debates oa.medicine oa.data oa.openwashing
EPA's Pruitt unveils controversial limits to scientific research - CNNPolitics

https://www.cnn.com/2018/04/24/politics/epa-scott-pruitt-science/index.html

ab1630's tagged items 04/25/2018

oa.new oa.usa oa.legislation oa.policies oa.stem oa.open_science oa.epa oa.environment oa.geo oa.government oa.psi oa.access oa.privacy oa.public_health oa.climate oa.debates oa.medicine oa.data oa.openwashing
E.P.A. Announces a New Rule. One Likely Effect: Less Science in Policymaking. - The New York Times

https://www.nytimes.com/2018/04/24/climate/epa-science-transparency-pruitt.html

ab1630's tagged items 04/25/2018

oa.new oa.usa oa.legislation oa.policies oa.stem oa.open_science oa.epa oa.environment oa.geo oa.government oa.psi oa.access oa.privacy oa.public_health oa.climate oa.debates oa.medicine oa.data oa.openwashing
Trump’s EPA Wants To Dramatically Restrict The Science It Uses

https://www.buzzfeed.com/zahrahirji/secret-science-epa-pruitt?utm_term=.fqEpxW8Bz#.eeAdkMZR4

ab1630's tagged items 04/25/2018

oa.new oa.usa oa.legislation oa.policies oa.stem oa.open_science oa.epa oa.environment oa.geo oa.government oa.psi oa.access oa.privacy oa.public_health oa.climate oa.debates oa.medicine oa.data oa.openwashing
US environment agency pushes to limit its use of non-public data

https://www.nature.com/articles/d41586-018-04968-7

ab1630's tagged items 04/25/2018

oa.new oa.usa oa.legislation oa.policies oa.stem oa.open_science oa.epa oa.environment oa.geo oa.government oa.psi oa.access oa.privacy oa.public_health oa.climate oa.debates oa.medicine oa.data oa.openwashing
Scott Pruitt Proposes ‘Transparency’ Rule To Limit The EPA’s Use Of Public Health Studies | HuffPost

https://www.huffingtonpost.com/entry/pruitt-epa-transparency-rule-science_us_5adf44a8e4b07560f395fb16

ab1630's tagged items 04/25/2018

oa.new oa.usa oa.legislation oa.policies oa.stem oa.open_science oa.epa oa.environment oa.geo oa.government oa.psi oa.access oa.privacy oa.public_health oa.climate oa.standards oa.speed oa.debates oa.medicine oa.data oa.openwashing
Pruitt Proposes New Rule Defining What Science Can Be Used By EPA : The Two-Way : NPR

https://www.npr.org/sections/thetwo-way/2018/04/24/605341791/pruitt-proposes-new-rule-defining-what-science-can-be-used-by-epa

ab1630's tagged items 04/25/2018

oa.new oa.usa oa.legislation oa.policies oa.stem oa.open_science oa.epa oa.environment oa.geo oa.government oa.psi oa.access oa.aaas oa.privacy oa.public_health oa.reproducibility oa.surveys oa.climate oa.medicine oa.data oa.openwashing
Débat : Les données de notre santé doivent rester confidentielles

http://theconversation.com/debat-les-donnees-de-notre-sante-doivent-rester-confidentielles-92950

ab1630's tagged items 04/05/2018

oa.new oa.french oa.france oa.europe oa.policies oa.government oa.privacy oa.open_science oa.stem oa.psi oa.pharma oa.medicine oa.data
Health breached privacy law in open data bungle: OAIC - Security - iTnews | Australia

https://www.itnews.com.au/news/health-breached-privacy-law-in-open-data-bungle-oaic-487936

ab1630's tagged items 03/29/2018

oa.new oa.australia oa.data oa.privacy oa.pharma oa.government oa.law oa.policies oa.medicine oa.patients oa.lay

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